Page 2A -- Addison Independent, Thursday, December 14, 2006

Poet remembers mother's final lucid talks
By Megan James
  VERGENNES -- During the last 14 months of Ruth Klein's life, her daughter Deanna Shapiro, a poet and artist, wrote down every conversation the two had at Helen Porter Healthcare and Rehabilitation's Dementia Unit. Those conversations, tracking klein's painful but often lighthearted decline into Alzheimer's disease, became the backbone of Shapiro's new book, "Conversations at the Nuring Home: A mother, a daughter and Alzheimer's."
  Shapiro spoke to an overflowing audience at Bixby Memorial Library in Vergennes last Wednesday about her family's experience with the progressive brain disease and her own process of transforming that experience into her first full-lenth book. She also used the appearance to publicly thank the employees of Helen Porter, who she said made all the difference in her mother's final days.
  "Vermont has been very good to us, and Vermont was very good to my mother," Shapiro said. "Helen Porter Healthcare and Rehab was also marvelous to my mother. And that's why this book is dedicated not only to my mother, but to the staff at Porter."
  Shapiro brought her 92-year-old mother to Vermont and found her a place at Jim Ringer Home Care in Vergennes, close to where she and her husband, Charlie, lived in Ferrisburgh. The deterioration of her mind had begun two years earlier when she lived in Westchester County, N.Y.
  Klein had been complaining about her neighbors, who she said had a child who could be heard through the walls whining all day about how bored he was. She said his parents were singers and made noise all the time. But when she asked other neighbors about it, they all said they heard nothing. And when Shapiro visited, she, too, heard nothing.
  "Isn't it funny?" Klein told her daughter. "I wear a hearing aid, and I hear them and you don't."
  Shapiro realized her mother was having hallucinations and needed more care than she was able to give in her sporadic visis to New York.
  It wasn't until Klein went to the hospital after falling and breaking her pelvis that doctors at Porter determined she was experiencing brain damage. They could not diagnose her with Alzheimer's explicitly, but they recognized enough symptoms to admit her to the Dementia Unit.
  That's when the conversations began.

DEANNA SHAPIRO

  Shapiro recorded a total of 70 conversations, some hostile and disorienting, some surprisingly lucid and beautiful. The mother and daughter talked about Klein's neighbor, Tim, whose mental state had deteriorated much more than hers, and about the art classes Klein reluctantly attended, where she produced paintings Shapiro later had framed and brought to the Bixby talk.
  In her book, which was published by Phoenix Rising Arts Publishing, Shapiro included her poetry inspired by 20 years of interviews with her mother about her family and memories. She also threaded nurses' reports throughout the conversations to show the darker side of Klien's mental decline, her hostility and even violence toward her fellow patients and the Porter staff.
  After she spoke to the Bixby crowd, Shapiro invited the audience to share their experiences with Alzheimer's disease.
  Marcia Merryman Means of Vergennes told the story of her mother, who spent the last 10 years of her life at The Arbors in Shelburne, a residential care community exclusively serving the needs of Alzheimer's patients. Her mother had suffered an abdominal aneurism and in the operating room, lost oxygen to her brain, causing the same kind of brain damage that occurs to people with Alzheimer's disease.
  "She was an incredibly verbal person, and English teacher," Merryman Means said. Her family began noticing something was wrong when "she couldn't spell, she couldn't play Scrabble."
  But like Shapiro, Merryman Means said she was blessed with moments of her mother's lucidity, when the two could have conversations she would cherish long after her mother was gone.
  Shapiro, committed to focusing on the positive side of having a love one suffer from the debilitating disease, will donate all of the proceeds from her book to research in Alzheimer's disease.
  "I do think that there are gifts that can come out of this," she said. "There is joy and discovery, and there really is nothing to be afraid of."